Beyond Beneficence: Moral Asymmetry and the Minimization of Suffering in End-of-Life Care

Auteurs-es

DOI :

https://doi.org/10.7202/1124210ar

Mots-clés :

soins de fin de vie, compassion, conséquentialisme, asymétrie morale, soins palliatifs

Langue(s) :

Anglais

Résumé

Cet article examine de manière critique les fondements éthiques de la minimisation de la souffrance en fin de vie. La réduction de la souffrance constitue une préoccupation majeure dans le discours éthique relatif aux soins de fin de vie. Certains penseurs accordent une importance particulière au fait de réduire autant que possible la souffrance non désirée et inutile en fin de vie. Pourtant, beaucoup d’autres considèrent que la minimisation de la souffrance constitue une justification insuffisante, voire risquée, pour la prise de décision en fin de vie. Le désir de minimiser la souffrance est souvent considéré comme équivalent ou entièrement réductible à l’utilitarisme ou, en bioéthique, au principe de bienfaisance. J’argumente ici qu’il est erroné de fonder le désir de minimiser la souffrance en fin de vie sur l’utilitarisme ou la bienfaisance, puisqu’ils reposent sur une symétrie morale, alors que l’engagement à minimiser la souffrance est moralement asymétrique. Comme alternative, je propose et développe la doctrine du moindre mal évitable (DMME), fondée sur l’utilitarisme négatif, également appelé conséquentialisme moralement asymétrique. J’évalue la DMME au regard d’une série de traitements de fin de vie et montre qu’elle s’accorde bien avec les engagements éthiques de ceux qui souhaitent minimiser la souffrance en fin de vie. Je conclus que la DMME offre aux personnes, aux institutions et aux médecins une base théorique formelle, systématisée et défendable pour soutenir le désir de minimiser la souffrance en fin de vie.

Références

1. Wolf C. O repugnance, where is thy sting? In: Tännsjö T, Ryberg J, editors. The Repugnant Conclusion: Essays on Population Ethics. Dordrecht: Springer; 2004. p. 61-80.

2. Mayerfeld J. The moral asymmetry of happiness and suffering. Southern Journal of Philosophy. 1996;34(3):317-38.

3. Popper KR. The Open Society and Its Enemies. Ryan A, Gombrich EH, editors. Princeton: Routledge; 1945.

4. Häyry M. Exit duty generator. Cambridge Quarterly of Healthcare Ethics. 2024;33(2):217-31.

5. Scarre G. Utilitarianism. New York: Routledge; 2020.

6. Smart JJC. Negative utilitarianism. In: D’Agostino F, Jarvie I, editors. Freedom and Rationality: Essays in Honor of John Watkins From his Colleagues and Friends. Dordrecht: Springer Netherlands; 1989. p. 35-46.

7. Smart RN. Negative utilitarianism. Mind. 1958;67(268):542-43.

8. Krisman-Scott MA. Origins of hospice in the United States: The care of the dying, 1945–1975. Journal of Hospice & Palliative Nursing. 2003;5(4):205-10.

9. Quill TE, Miller FG, editors. Palliative Care and Ethics. Oxford: Oxford University Press; 2014.

10. Davies E, Higginson IJ. Better palliative care for older people. Copenhagen: World Health Organization, Regional Office for Europe; 2004.

11. Dy SM, Kiley KB, Ast K et al. Measuring what matters: Top-ranked quality indicators for hospice and palliative care from the American Academy of Hospice and Palliative Medicine and Hospice and Palliative Nurses Association. Journal of Pain and Symptom Management. 2015;49(4):773-81.

12. Hanks GW, editor. Oxford Textbook of Palliative Medicine. New York: Oxford University Press; 2011.

13. Cassell EJ. The nature of suffering and the goals of medicine. Loss, Grief & Care. 1998;8(1-2):129-42.

14. Varelius J. Suffering at the end of life. Bioethics. 2019;33(1):195-200.

15. Quill TE. Death and dignity. In: Battin MP, Francis LP, Landsman BM, eds. Death, Dying and the Ending of Life, Vol. I–II. London: Routledge; 2019. p. 245-48.

16. Rehnquist WH; Supreme Court of the United States. U.S. Reports: Vacco v. Quill, 521 U.S. 793. Washington, DC: U.S. Supreme Court; 1996.

17. Miller FG, Truog RD, Brock DW. Moral fictions and medical ethics. Bioethics. 2010;24(9):453-60.

18. Bronner B. Two ways to kill a patient. Journal of Medicine and Philosophy. 2018;43(1):44-63.

19. Beauchamp TL, Childress JF. Principles of Biomedical Ethics. New York: Oxford University Press; 1979/2001.

20. Greif A. The morality of euthanasia. Organon F. 2019;26(4):612-34.

21. Rigby B, Symons X. Abortion, euthanasia, and the limits of principlism. Medicine, Health Care and Philosophy. 2023;26(4):549-56.

22. Young R. Voluntary euthanasia. In: Zalta EN, Nodelman U, editors. The Stanford Encyclopedia of Philosophy, Summer 2024 Edition; 2024.

23. Singer P. Voluntary euthanasia: A utilitarian perspective. Bioethics. 2003;17(5-6):526-41.

24. Kass L. Life, Liberty & the Defense of Dignity: The Challenge for Bioethics. New York: Encounter Books; 2002.

25. van der Haak D. Death anxiety, immortality projects and happiness: A utilitarian argument against the legalization of euthanasia. Conatus – Journal of Philosophy. 2021;6(1):159-74.

26. Dworkin R. Life’s Dominion: An Argument About Abortion, Euthanasia, and Individual Freedom. New York: Vintage; 2011.

27. Dyck AJ. Life’s Worth: The Case Against Assisted Suicide. Grand Rapids: Wm. B. Eerdmans Publishing; 2002.

28. Norcross A. Killing and letting die. In: Frey RG, Heath Wellman C, editors. A Companion to Applied Ethics. Oxford: Blackwell Publishing; 2007. p. 451-63.

29. Mangan JT. An historical analysis of the principle of double effect. Theological Studies. 1949;10(1):41-61.

30. Bogatyńska-Kucharska A. The doctrine of double effect: A comparison of the version of Thomas Aquinas and contemporary accounts as formulated by Joseph Mangan and Joseph Boyle. Forum Philosophicum. 2020;25(2):273-92.

31. Harnad S. My orgasms cannot be traded off against others’ agony. Animal Sentience. 2016;1(7):18.

32. Hurka T. Asymmetries in value. Nous. 2010;44(2):199-223.

33. Mayerfeld J. Suffering and Moral Responsibility. New York: Oxford University Press; 1999.

34. Parfit D. Reasons and Persons. 2nd ed. Oxford: Oxford University Press; 1987.

35. Wolf C. Person-affecting utilitarianism and population policy; or, Sissy Jupe’s theory of social choice. In: Fotion N, Heller JC, editors. Contingent Future Persons: On the Ethics of Deciding Who Will Live, or Not, in the Future. Dordrecht: Springer; 1997. p. 99-122.

36. Goetz JL, Keltner D, Simon-Thomas E. Compassion: An evolutionary analysis and empirical review. Psychological Bulletin. 2010;136(3):351-74.

37. Ord T. Why I’m not a negative utilitarian. Toby Ord. 28 Feb 2013.

38. Arrhenius G, Bykvist K. Future generations and interpersonal compensations. Uppsala Prints and Preprints in Philosophy; 1995.

39. Truog RD, Campbell ML, Curtis JR, et al. Recommendations for end-of-life care in the intensive care unit: A consensus statement by the American College of Critical Care Medicine. Critical Care Medicine. 2008;36(3):953-63.

40. Quill TE, Ganzini L, Truog RD, Pope TM. Voluntarily stopping eating and drinking among patients with serious advanced illness—clinical, ethical, and legal aspects. JAMA Internal Medicine. 2018;178(1):123-27.

41. Gurschick L, Mayer DK, Hanson LC. Palliative sedation: An analysis of international guidelines and position statements. American Journal of Hospice and Palliative Medicine. 2015;32(6):660-71.

42. Cassell EJ, Rich BA. Intractable end-of-life suffering and the ethics of palliative sedation. Pain Medicine. 2010;11(3):435-38.

43. Treem J. Medical aid in dying: Ethical and practical issues. Journal of the Advanced Practitioner in Oncology. 2023;14(3):207-11.

44. Padubidri JR, Antony Manoj M, Singh T. Euthanasia: A good death or an act of mercy killing? A global scenario. Clinical Ethics. 2022;17(2):118-21.

45. Callahan D. When self-determination runs amok. Hastings Center Report. 1992;22(2):52-5.

46. Crawley LM, Marshall PA, Lo B, Koenig BA. Strategies for culturally effective end-of-life care. Annals of Internal Medicine. 2002;136(9):673-79.

47. Kagawa-Singer M, Blackhall LJ. Negotiating cross-cultural issues at the end of life: You got to go where he lives. JAMA. 2001;286(23):2993-3001.

48. Gomes B, Calanzani N, Curiale V, McCrone P, Higginson IJ. Effectiveness and cost-effectiveness of home palliative care services for adults with advanced illness and their caregivers. Cochrane Database of Systematic Reviews. 2013;6(1):CD007760.

49. Buturovic Z. Embracing slippery slope on physician-assisted suicide and euthanasia could have significant unintended consequences. Journal of Medical Ethics. 2021;47(4):257-58.

50. Meier DE. The treatment of patients with unbearable suffering—the slippery slope is real. JAMA Internal Medicine. 2021;181(2):160-61.

51. Singer P. Practical Ethics. Cambridge: Cambridge University Press; 2011.

52. Chadwick A, Craig F. Withholding and withdrawing treatment in paediatric intensive care. Paediatrics and Child Health. 2024;34(2):69-73.

53. Gaul AL, Wilson SF. Should a ventilator be removed at a patient’s request? An ethical analysis. Journal of Neuroscience Nursing. 1990;22(5):326-29.

54. Panayiotou P. Beneficence cannot justify voluntary euthanasia and physician-assisted suicide. Journal of Medical Ethics. 2024;50(6):384-87.

Publié

2026-03-16

Comment citer

[1]
Braus A. Beyond Beneficence: Moral Asymmetry and the Minimization of Suffering in End-of-Life Care. Can. J. Bioeth 2026;9:87-95. https://doi.org/10.7202/1124210ar.