The Development of Bioethics at The Hospital for Sick Children: From Committee to Integration
DOI :
https://doi.org/10.7202/1124214arMots-clés :
histoire, bioéthique pédiatrique, département de bioéthique, SickKids, CanadaLangue(s) :
AnglaisRésumé
Documenter l’évolution et les expériences des services de bioéthique contribue à constituer une base de données sur les réussites et les défis qui peut servir de ressource durable pour toutes les personnes impliquées dans le travail de bioéthique. Cette chronologie de la bioéthique à l’Hôpital pour enfants malades (SickKids) de Toronto, au Canada, est l’un de ces projets de documentation. Elle décrit les événements, les défis et les réussites qui ont contribué à l’évolution du département de bioéthique, qui est passé d’un comité d’éthique à un département de plus en plus intégré aux équipes et aux processus de l’ensemble de l’organisation. À partir d’une combinaison de sources primaires et secondaires, notamment des documents préparés pour des enquêtes d’accréditation cycliques, des coupures de journaux, des livres et des rapports, des notes de réunion, des témoignages directs, des témoignages oraux, des enregistrements vidéo, des communications personnelles et des documents d’archives, nous explorons le développement et l’intégration des activités de bioéthique à SickKids et la manière dont le personnel et les collègues ont abordé la place et l’objectif de la bioéthique au sein de l’institution depuis le début des années 1980 jusqu’à aujourd’hui. Chaque ressource de bioéthique hospitalière reflète et contribue au développement situé de la bioéthique dans des contextes locaux, nationaux et internationaux. Un examen approfondi du développement d’un service permet de préserver les contributions des personnes, des pratiques et des contextes qui ont marqué les étapes importantes de son développement et façonné sa culture organisationnelle. Ce type de travail de réflexion soutient le développement des services de bioéthique, garantit que les enseignements tirés des connaissances institutionnelles restent accessibles aux bioéthiciens actuels et futurs, et apporte des informations transférables qui peuvent éclairer d’autres services et le domaine plus large de la bioéthique appliquée.
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© Zoe Ritchie; Lucie Turner, James Anderson, Roxanne Kirsch, Maram Hassanein, Melissa McCradden, Lauren Chad, Sarah Lord, Randi Zlotnik Shaul 2026
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