“What Is PER?” Patient Engagement in Research as a Hit

Authors

  • Jean-Christophe Bélisle-Pipon Petrie-Flom Center, Harvard Law School https://orcid.org/0000-0002-8965-8153
  • Claudio Del Grande School of Public Health, Université de Montréal
  • Geneviève Rouleau Faculty of Nursing, Laval University

DOI:

https://doi.org/10.7202/1058274ar

Keywords:

patient engagement, research-based artistic work, experiential knowledge, patient empowerment, patient-oriented research, patient-centered outcomes, patient involvement

Language(s):

English

Abstract

Engaging patients in research conduct and agenda setting is increasingly considered as an ethical imperative, and a way to transcend views of patients as passive subjects by fostering their empowerment. However, patient engagement in research (PER) is still an emerging approach with debated definitional and operational frameworks. This song addresses the sometimes difficult encounter and elusive mutual understanding between researchers and patients. “What is PER?” is an impressionistic illustration of the challenges and issues that can be found in the universe of patient engagement in research.

(c) Emanuelle Dufour

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Published

2018-07-06

How to Cite

[1]
Bélisle-Pipon J-C, Del Grande C, Rouleau G. “What Is PER?” Patient Engagement in Research as a Hit. Can. J. Bioeth 2018;1:59-62. https://doi.org/10.7202/1058274ar.

Issue

Vol. 1 No. 2 (2018): Open Issue

Section

Art, Culture & Creative Work

License

Copyright (c) 2018 Jean-Christophe Bélisle-Pipon, Claudio Del Grande, Geneviève Rouleau

Creative Commons License

This work is licensed under a Creative Commons Attribution 4.0 International License.

The Canadian Journal of Bioethics applies the Creative Commons Attribution 4.0 International License to all its publications. Authors therefore retain copyright of their publication, e.g., they can reuse their publication, link to it on their home page or institutional website, deposit a PDF in a public repository. However, the authors allow anyone to download, reuse, reprint, modify, distribute, and/or copy their publication, so long as the original authors and source are cited.